Cover of Episode 7: Behind the Behaviour: Understanding the Causes

Episode 7: Behind the Behaviour: Understanding the Causes

Episode 7: Behind the Behaviour: Understanding the Causes

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Summary
 In this episode, Dr Marie Dunnion talks with Dr Hayley Crawford, an Associate Professor at the University of Warwick. Hayley specialises in understanding mental health and behavioural outcomes in people with rare genetic syndromes and intellectual disabilities.In this discussion, Hayley introduces the Behaviour Checklist, a practical tool designed for parent carers and professionals to help identify the causes of Behaviours that Challenge (BtC) in children with moderate to profound intellectual disability. She explains why the checklist was developed, how it can be used in different settings, and its value as a reliable and accessible resource for families and clinicians.See below for links to resources, charities, support services, and related research:Funders: The Checklist Project was funded by Great Ormond Street Hospital Charity and supported by Cerebra. We gratefully acknowledge Dr Hayley Trower for leading the day-to-day research activities and providing critical intellectual input throughout the project. Cerebra NetworkCerebra Network Website – a UK-wide research team dedicated to improving the lives of people with neurodevelopmental conditions and rare genetic syndromes.Charities and Support ServicesAffinity Hub – supporting parents of disabled children and adults and signposting to professional support.Cerebra Charity Website – the national charity dedicated to helping children with brain conditions and their families discover a better life together.ResearchThe Development of the Behaviour Checklist research paper: Navigating care together: developing a collaborative checklist to improve care for children with intellectual disabilitiesDiagnosis and management of Cornelia de Lange syndrome: first international consensus statementDistress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomesSelf-injury and aggression in adults with tuberous sclerosis complex: frequency, associated person characteristics, and implications for assessmentProfiles of atypical sensory processing in Angelman, Cornelia de Lange and Fragile X syndromesThe behaviour and wellbeing of children and adults with severe intellectual disability and complex needs: the Be-Well checklist for carers and professionalsResourcesThe Behaviour Checklist - Downloadable CopyThe Checklist Manifesto: How to Get Things Right. Atul Gawande: Amazon.co.uk: BooksCerebra A-Z of All Parent Carer GuidesCerebra Parent Carer Guide: Looking after your own wellbeing as a parent/carer of a child with a brain conditionCerebra Parent Carer Guide: Managing challenging behaviour Cerebra Parent Carer Guide: Pain My Communication Passport – a practical and person-centred way of supporting children, young people and adults who cannot easily speak for themselves.For any enquiries, please complete the contact form on our website: CONTACT | Cerebra Network
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