Still Holding Hands
Love, Loss, Faith and a Frontotemporal Dementia Caregiver's Journey (The Still Holding Hands Collection)
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Narrated by:
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Erika Calvert
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By:
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Lorrie Cox
STILL HOLDING HANDS: Love, Loss, Faith, and a Frontotemporal Dementia Caregiver's Journey
Foreword by Dr. Bruce L. Miller, MD—Director, UCSF Memory and Aging Center, leading expert on frontotemporal dementia
From 2006 to 2015, Lorrie Cox walked one of the hardest roads a spouse can travel—watching her husband John slowly disappear to frontotemporal dementia (FTD), a devastating brain disease that strikes people in the prime of life, often in their 40s, 50s, and 60s. Unlike Alzheimer's, FTD changes personality, behavior, and language first. Most families don't see it coming—and most don't know where to turn. When John was diagnosed, everything changed—their marriage, their family, their faith, and the shape of everyday life.
In this honest Christian caregiver memoir, Lorrie invites you into their story: from the first confusing signs that something was wrong, through years of caregiving and grief, to the quiet morning of March 2, 2015, when John went home. Drawing on her CaringBridge journals kept in real time throughout John's illness, Still Holding Hands is both a deeply personal dementia spouse memoir and a practical faith-based caregiving guide for anyone navigating early-onset dementia or a loved one's long goodbye.
In this book, you'll find:
- A real, unvarnished look at life with FTD—emotionally, spiritually, and practically.
- Guidance on navigating the medical system, protecting finances, and caring for yourself as a dementia caregiver.
- Honest Christian grief support for spouses and families walking through anticipatory loss.
- Practical help for adult children, faith communities, and support groups who want to understand FTD from the inside