Growing Up Different: 30 Operations, CMN & Finding Purpose | Jodi Whitehouse
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In this episode of The Danifesto Podcast, I'm joined by Jodi Whitehouse, founder and CEO of Caring Matters Now, a UK charity supporting people and families affected by Congenital Melanocytic Naevus (CMN), a rare condition that causes large birthmarks and can sometimes lead to serious health complications.
Born in Liverpool with CMN covering much of her body, Jodi grew up facing stares, judgement and isolation. She underwent over 30 operations during her childhood, missed years of school and spent much of her early life not fully understanding her condition.
But what started as an incredibly difficult childhood eventually became something much bigger.
At just 16 years old, Jodi began helping other families affected by CMN, which eventually led to the creation of Caring Matters Now. Today, the charity supports over 900 families, raises awareness of visible differences and helps fund pioneering medical research.
We talk about what it was really like growing up looking different, how she dealt with people's reactions, the impact of her childhood experiences, her Christian faith and the moment she realised that being different wasn't something she needed to hide.
We also discuss the incredible work behind Caring Matters Now, the progress being made in CMN research and why Jodi believes everyone deserves to feel comfortable and confident in their own skin.
It's an honest and inspiring conversation about acceptance, resilience, faith and turning personal challenges into something that can change other people's lives.
A massive thank you to Jodi for coming on the podcast and sharing her story.
Find out more about Caring Matters Now or support their work:
https://www.caringmattersnow.co.uk/
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